LLMD Visit June 2011

Well I just got home from my appointment with my LLMD. 

There is good and bad news.

Good news first:  One of the four co-infections is gone according to the lab work.  A second one is on its way out, so hopefully the labs will be clean when I return in the middle of September.  

Bad news:  My bloodwork didn't explain why my adrenal complex hormones are so out of wack, so I need to have a pituitary MRI.  The endocrinology is either off because of some type of issue with my pituitary gland, or it is just neurological damage from the Lyme Disease (I really think it is the latter but we need to be sure)
     Also I have these really swollen and painful lumps in my abdomen that he really does not like nor does he know what they are, so back to the specialists for that.  I also have some symptoms of polycystic ovaries, so need to go to another specialist for that issue.

All in all, I am happy to finally see some visible progress, even if it is just on paper.  It is almost an entire year on antibiotics, and am just starting to make some pathological progress.  I just hope so so so so much that clinical progress is to follow soon, even just a little bit.

The most frustrating thing about this disease is how small these victories are.  Do not get me wrong, I am SO happy to see a change in the bloodwork, I just can't help but feel a bit somber about the fact that physically I still continue to feel worse.

Yes, I am making progress, but sometimes I feel like a tiny ant trying to make it down a long human-sized street: you power forward so hard and bear the burdens of incredibly heavy loads, and when you look at the objects nearest you, they are passing and you can see that you're making progress, but when you look ahead at the finish line, you realize just how much farther you have to go until you can finally rest....

Again, I am happy to see progress, don't get me wrong.  I'm just the type of person that will never be satisfied with anything until I reach my goal of being totally healthy and of being able to get the life back that I worked SO hard to build for myself. 

It's amazing that an insect half the size of a pencil eraser can actually erase so much...I really HATE ticks. 

Anyway, that is it for now.  Some good things happening finally, and I look forward to more improvements soon...

I love you all and I will post again soon!